COMMENT from I NJATI / Do you want to solve a problem? Don't look for the solution, but eliminate the problem!

 Kliko këtu për të tjera
Voxpress:

"Petro Nini" teacher asks for Albanians' help: My boys are dying before my eyes from a rare disease

2025-06-13 21:05:33Aktualitet SHKRUAR NGA REDAKSIA VOX
Teacher Etleva Ruçi with one of the boys

Etleva Ruçi, a dedicated mother and teacher at the "Petro Nini" High School, is asking for the help of Albanians. After the loss of her husband, a police officer who left the entire burden of raising two sons on her shoulders, Etleva is now facing a terrible ordeal.

The eldest son, Tedi, 27 years old, has been affected by a rare and potentially fatal disease, Adreno-Leuko Dystrophy, which paralyzes muscles, damages the nervous system and is unforgiving. As if that weren't enough, a few days ago, she was hit by another blow, and the youngest son, Noel, 24 years old, is also a carrier of the same gene.

There is no cure for this disease in Albania. The only hope remains abroad, in the hands of genetic doctors and genetic engineering therapies that cost a lot. Noeli has just graduated from University with an average of 9.8 and works to support his family, while Tedi, helpless, faces a diagnosis that only hope can keep alive.

Meanwhile, their mother, left alone and without any economic opportunity, seeks help from Albanians to save her sons. Etleva has never asked for anything. She has lived with dignity and honesty, she has given knowledge to the younger generations, but today she is on her knees before us.

She is begging Albanians for help so that the two lights in her house don't go out, so that the disease doesn't take her sons. JOQ Albania has published its appeal for help and joins the call for Albanians to open their hearts and help her.

Data for assistance: IBAN: AL64202111230000002800837768. Link to donate to GoFoundMe ( CLICK HERE ) .

A MOTHER'S MESSAGE TO HELP HER BOYS:

Dear editorial staff! I am writing to you with a heavy soul and a wounded heart. I am Etleva Ruci, mother of two sons and teacher at Petro Nini High School. My husband (a police officer) passed away and I have had to raise the boys alone. A year ago, my eldest son, 27 years old, fell ill. After a long ordeal at the hospital, only two months ago I was diagnosed with a very rare genetic disease. This disease damages the nerves, paralyzes the muscles and has a tragic end. The misfortune for me does not end here, because a few days ago I learned that my other son, 24 years old, is also a carrier of this same gene.

My son just graduated from university with a 9.8 GPA and is working to help me cope with this situation.

This disease that my sons Noel and Tedi have cannot be cured in Albania and the costs for its treatment are too high for our means. With pain and hope I turn to YOU ??as a last resort. I have never asked for public assistance before, I have worked my whole life with honesty and dignity. Today I am on my knees before you, like a mother who is watching her whole life fade before her eyes.

I have opened a Go Fund Me. And maybe some Albanian doctor who works in the world as a geneticist. It is a very rare disease treated with genetic engineering. One boy is very sick but don't let the other one get away. The disease is called Adreno-Leuko Dystrophy. Please help me make this case public. With much trust and gratitude, Etleva Ruci.

Video

SHIKO KANALIN NE YOUTUBE
×