My experience at the Oncologist at QSUT

2022-07-08 11:15:16Pikëpamje SHKRUAR NGA MAJLINDA SELIMI
My experience at the Oncologist at QSUT
Oncology Hospital

During June, I accompanied my mother for 17 days of treatment at the oncologist. I had never been in this ward and I had never stayed so long in a hospital before.

We settled in the Radiotherapy pavilion, which is located on the 4th floor, and I am sharing my experience here, listing the services and approaches that need to be improved for the benefit of patients. Under the lens of a patient companion, I think that changes are needed in the organization, in the infrastructure of services, and it is essential to invest in modern equipment and treatments such as Pet scanner, Gamma Knife or immunotherapy.

1. It is the whole of Albania with an "oncology hospital" (which offers palliative services) concentrated only in Tirana. Everyone collides there from south to north, causing chaos, lack of service from congestion and above all patients not getting the service they need. They come from the top of Erseka or the top of Kukes for services, radiology and chemotherapy, when these should simply be offered to them in the nearest towns. Be it for health facilities, (the patient does not travel long hours back and forth) but also for economic facilities. There are less ticket costs to the nearest city than to come all the way to the capital. In short, oncology services should be decentralized in other cities as well. For example, the Durrës hospital is certified and must offer palliative services, radiotherapy, and cover chemotherapy and more diseases. The same should be done for other cities, so that patients with immune diseases do not have to travel for hours to receive treatment. At least one hospital in the south and one in the north must function with oncology capacity to achieve visible results. Plus they offer treatment, or palliative care, in case of need for advanced degrees of autoimmune diseases, specifically for grade 5, because this service is not a luxury, but a necessity.

2. The internal organization of services, such as the waiting of patients for admission and the planning of daily chemo is a suffering for the deserted patients. for example, patients who came from other cities with a recommendation for hospitalization (like my mom) had to go through the emergency first to get the tests done because of the bureaucracy. The results of the analyzes determined the hospitalization ward regardless of the recommendation or the fact that there was an open card within the oncology department (some chemo treatments are only done in Tirana). So there is no genuine palliative emergency. This was a ridiculous procedure that brings fatigue, suffering and exhaustion to the patient. All this 4-5 hour matter can be easily avoided by registering the medical records in digital form, in a special computer system, easily accessible and coordinated by all the country's hospitals, and all patient data can be placed there, such as; visits, analyses, diagnostics, treatments, etc. This would not only facilitate the services, but also the doctors would determine the diagnosis more easily, being oriented towards the problem. It would disappear once and for all the huge charts with pages like sheets, plus the patient or the one who accompanies him would not play the role of the robot to repeat every doctor who meets almost the entire progress of the disease. It would be a good idea to take the bag with you (the biggest one you have in your backpack) for papers with analyses, recommendations, entry forms, exit forms, answers, discs, scanners, images, graphs, etc. Simply with the number of the identity card, every medical card would be digitally recorded, as well as every visit or consultation of the patient.

3. The icing on the cake was the organization of the daily chemotherapy service. It is to put the hands on the head form and the way of his approach. Let's start from the door or entrance, where patients, despite being scheduled, wait for their name to be called by the coordinators of the organization to receive the venous treatment. Scandalous! Imagine a patient with a grade 4 tumor who traveled by bus from the top of Fier or Erseka, from Kukësi or Tropoja to Tirana and still has to wait to receive treatment, somewhere lying in the flower gardens around the hospital until the organizers they read his name. How painful and ghastly! The daily chemotherapy room on the first floor is so small that even the patients of Tirana are not at risk, let alone those from the cities. It would be more appropriate that the entire lobby of the oncology clinic (the main entrance) be transformed into a waiting room with armchairs and beds for patients scheduled for chemotherapy. They should not wait outside for 2-3 hours, until their turn comes or their name is read as if they were in the army, but the door is open for them, so that they can be accommodated and receive help directly. It's all that big corridor with all that empty space, with a counter with 3 receptionists that I've never set foot in there, taking up space for nothing. And patients wait outside at 38°- 40° or minus when it's cold. Counter services can be provided through the windows or from the other side, so the sick will have priority. their name is read as if they were in the army, but the door is open for them, so that they can be accommodated and receive help directly. It's all that big corridor with all that empty space, with a counter with 3 receptionists that I've never set foot in there, taking up space for nothing. And patients wait outside at 38°- 40° or minus when it's cold. Counter services can be provided through the windows or from the other side, so the sick will have priority. their name is read as if they were in the army, but the door is open for them, so that they can be accommodated and receive help directly. It's all that big corridor with all that empty space, with a counter with 3 receptionists that I've never set foot in there, taking up space for nothing. And patients wait outside at 38°- 40° or minus when it's cold. Counter services can be provided through the windows or from the other side, so the sick will have priority.

4. It is imperative that the oncologist be equipped with the appropriate equipment for diagnosis or treatment of immune diseases. In no state hospital is there a PET Scanner, so important for tracking metastases in time. Neither treatment nor radiation with Gamma Knife, TrueBeam and CyberKnife for head and body tumors. Many patients would be helped by Radiotherapy treatment through the means mentioned above. Also, the implementation and use of Immunotherapy as a form with results for now against tumor diseases should be started urgently. This would give hope and solutions because immunotherapeutic drugs are extremely expensive and are only available outside of Albania and not everyone can afford them. I don't believe that equipment or Immunotherapy cost more than hundreds of millions of dollars in furniture for the offices of QSUT leaders. Why should we treat our patients in Turkey or elsewhere for lack of equipment?! I left some directories without luxury and the problem was solved.

5. When I think that millions of tenders are being launched for office furnishings and tumor patients of various degrees suffer from the heat because the pavilion has neither a heating nor cooling system, my mind runs away. When we went down to the 1st floor for the sessions, the cooling system was running everywhere in the offices and corridors. Whereas on the 4th floor, where the terrace was close, there was no cooling system because the heat became unbearable, which affected those patients who had problems with the respiratory tract or lungs. The entire pavilion of more than 25 beds did not have at least one water cooler. In all that African heat the water (Frozen) did not stay cold for more than 2 hours, imagine how many bottles of water I bought in 17 days. There were patients who had to stay more than 1 month due to treatment. There was water 24 hours and showers to wash, but there was no laundry for the personal clothes of the sick. Here I am not talking about the sheets (they were changed every day by the staff), but about the personal clothes of the patients themselves, especially those who are from far away. It was also noticeable that the staff did not have gloves when putting or removing the vigons, they used them only in specific cases. This poses a risk for the spread of viruses and bacteria from one new patient to another. Hand sanitizer was also missing in the patient rooms, but I think the staff had it for their own use in the infirmary. While the press belongs to the staff, they were generally correct, polite and communicative. especially those from far away. It was also noticeable that the staff did not have gloves when putting or removing the vigons, they used them only in specific cases. This poses a risk for the spread of viruses and bacteria from one new patient to another. Hand sanitizer was also missing in the patient rooms, but I think the staff had it for their own use in the infirmary. While the press belongs to the staff, they were generally correct, polite and communicative. especially those from far away. It was also noticeable that the staff did not have gloves when putting or removing the vigons, they used them only in specific cases. This poses a risk for the spread of viruses and bacteria from one new patient to another. Hand sanitizer was also missing in the patient rooms, but I think the staff had it for their own use in the infirmary. While the press belongs to the staff, they were generally correct, polite and communicative.

To summarize, oncology and palliative services should be added to key cities or decentralized (not only in Tirana), to help patients in the treatment of autoimmune diseases.

The provision of radiotherapeutic devices for head and body tumors is a basic-vital need for patients of this category and perhaps the last hope of prolonging life for them. Immunotherapy should be implemented as soon as possible as the most effective treatment that science has so far.

Let's ease their pain by creating suitable conditions for as long as the disease allows them to live among us.

Ps The only good thing in the corridors of the pavilion was the presence of Drini. It radiated energy and conveyed the positive, just like the sun after the rain, it was like the Lion among the Hyenas.

And the bad part of the pavilion was just some nurse of the "Arta" type who got into the fun of not working the night shift and started giving "orders" or wanting "respect" by standing up like in the time of communism. Who knows what he thought of himself. That I found out, her "explosion or glaring" was due to her age, from working with a "friend" or was it the philosophy of socialist-communist education. Maybe he didn't even read the norms and rules of Hippocrates to apply them.


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